- Pray for our final week of therapy--that we will see even more progress and will feel comfortable with what's required of us at home once we leave.
- Sometimes it feels like a long shot, but I would love it if water is the only thing we have to be putting in Sunshine's tube during the day! It still feels like that would take a miracle, but we can pray for one!
- Continue to pray for the best schedule for us to return to complete 4-5 more weeks of therapy.
- Pray for both Matt and I to learn how to feed Sunshine well and deal with the difficulties that arise.
- Pray that Sunshine will stop gagging on liquidy foods and will be able to tolerate them well.
22 August 2014
- Praise for Sunshine's continued progress this week! 28oz in one day truly is a miracle for this child.
- Pray for rest for us all over the weekend. Sunshine has not been able to take good naps during the week and has to wake up early. We would love to all feel rested again.
- Pray for us as we balance the 5-feeding schedule as a family!
- We are gearing up for our last week here and I am looking forward to being at home with just the family and our little house (it's amazing how a wonderful house like the Ronald McDonald House can just start to feel too big after a while). I'm also nervous, not knowing how much more progress we'll see this next week and not knowing what life at home with look like with our new schedule. Pray for peace.
18 August 2014
- Huge praise for Sunshine's progress today. She ate/drank 20oz throughout the day and we were able to eliminate 9oz from her tube feedings!
- Pray for this type of growth and progress to continue throughout the week!
17 August 2014
- Praise that we were all feeling well today!
- Praise for good eating over the weekend.
- Pray for clear visible progress this week.
- Pray for stamina for all of us as the schedule feels rigorous at times.
15 August 2014
- Praise that we are all generally feeling better!
- Praise that both kids slept all night last night (and pray this continues!)
- Matt and Buttercup got to go on a fun "date" tonight to watch Frozen outdoors at a church down the street. I am so glad for something exciting for our big girl while her sister is getting so much attention these days.
- Pray for us this weekend as we attempt "therapy" feedings on our own.
14 August 2014
- Pray for Rachel's health as she's been dealing with some of the same stomach trouble Matt had.
- Pray for sleep and rest for all of us throughout the day, and especially at night.
- Praise for each little accomplishment and step of progress we see already.
- Pray as we prepare to do feedings ourselves over the weekend.
13 August 2014
- Praise that no one is overly concerned about Sunshine's fevers. We think they may be teething related and hope things improve soon.
- Pray for rest for all of us! The days are long and we are weary.
12 August 2014
- Continue to pray for all of our health. We don't want to spread anything!
- For Sunshine as she begins more difficult levels of therapy tomorrow. Eating is such a challenge for her. Pray for huge strides of success while we're here.
- For Buttercup as she's settling in and figuring out what to do with herself while Sunshine's in therapy.
- For Matt and I as the days are long and demanding with very little time to rest.
11 August 2014
- Matt woke up with a low fever, sore throat and stomach trouble this morning. Please pray for healing!
- If he is still sick, we need wisdom to decide how to proceed since he probably should not (or would not be allowed) to stay at the Ronald McDonald House while sick.
8 August 2014
- We will be leaving Sunday afternoon to drive to Indianapolis, stay overnight there and continue to Evansville on Monday morning. Sunshine's therapy starts Tuesday.
- This sudden change is schedule, while exciting, has been difficult for Buttercup to handle. She is especially sad about a birthday party she will be missing. Pray for extra special surprises for her while we're in Evansville.
- We will be doing 3 weeks of therapy. If Sunshine progresses amazingly, this might be all she needs. If she still needs more therapy after this, pray we can get that scheduled at a good time.
- Pray for health for all of us. The Ronald McDonald House, where we'll be staying, has to be very careful about sickness because the people staying there usually have children or babies in the hospital.
14 July 2014
Thank you for praying for us while we were at the Down Syndrome Conference.
We all slept much better after the first night we were there and we made it through the days with all the energy we needed. We appreciated all we were able to learn and enjoyed the people we were able to connect with while we were there. The girls also had a great time with Tia! Thank you, Anita!
10 July 2014
Praise:
- We had a great drive to Indy.
- Thankful for friends to stay with.
Prayer:
- That the girls will be able to sleep well in a new place. Sunshine had a difficult time trying to take a nap this afternoon. I'm praying for much better evenings and nap/rest times while Tia is watching them.
- That Matt and I will be able to attend all the sessions we need to and will be able to focus and learn a lot!
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