This week we are getting ready to attend the National Down's Syndrome Convention in Indianapolis. We are very excited for the weekend away and are looking forward to all we will learn at the convention. We will be staying with former dorm parents from Matt's Ecuador days and Tia Anita will be joining us to watch the girls while we are in the sessions. We are thankful for the opportunity to attend this big event! And, I have to admit, at times I am a little discouraged. See, when we registered for this in May, we thought we'd be applying for the feeding clinic in June and in our hopes and belief that God could make this move quickly, we even thought we could possibly be at the clinic already by the time the convention came around. And, we aren't. I don't know why this timing is best, but I know that it is God's timing and I have to trust that.
We called the clinic for updates daily and today they hadn't yet received the necessary form from our doctor. When they get that, they can submit the paperwork. Evidently, because of the big storm we had here last week, causing some power outages, and the holiday weekend, the doctor's office didn't receive the fax until today. Praying each piece gets resolved quickly so we can keep moving forward.
We also met with Sunshine's nutritionist today. Sunshine hasn't been gaining weight, in fact she lost a little, since the last appointment, so we have added 150 calories to her daily intake! That's a big increase, but it is what she needs to stay on the right growth track for now. I'm sure part of it is because she is so active!
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| Sunshine's big "eating accomplishment" this past week! She ate a whole vanilla pudding cup! Yay! (and the picture had to be totally posed. She was not nearly as pleased/proud of this accomplishment as she looks) |
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| Buttercup loved going on rides at the 4-H fair. It's hard to take pictures of moving children though, so they had this stationary horse set up for picture taking. |
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| Sunshine enjoyed the "play area" at the fair while Buttercup was going on rides. |
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| One of the biggest attractions though was the "petting zoo"! These are not your typical animals! |
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| Sunshine loves Giraffes. "raff... raff!" |
And here are some pictures of our Fourth of July picnic and evening watching fireworks.
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| The fireworks show had her absolutely captivated! |
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| Buttercup loved getting to do sparklers for the first time! |
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