We have made a couple of the meals smaller, only offering 5.5oz instead of 7oz to try to keep her from throwing up because of too much volume. That seems to be helping us out in the mornings to keep her food down. Unfortunately, it doesn't help us get her total volumes up. But that is where we are and to some extent, we have to accept that for now. It is what her stomach can handle and that will grow and change with time, but we can't teach that kind of change. In the afternoons, she usually seems to be able to tolerate more volume (no one can explain why that is).
Today, being Friday, was weight check day. Sunshine weighed in at 24lbs 8oz. That is a whopping 7oz more than she was on Monday. According to the dietician, kids are supposed to gain appx. 9grams/day. Well, Sunshine gained more like 30grams per day. Crazy! The good thing about that kind of gain this week is that it shows us we don't need to be tube feeding her quite as much as we have been! We are no longer supposed to count calories, but rather just count ounces. Whatever food Sunshine eats by mouth is enough and she should get 16oz total of her milk/yogurt drink. (So, today she drank 11oz of it during her meals, so we only tube fed her 5oz at the end of the day.) Finally, it isn't so hard to calculate how much to tube feed her at the end of the day! Hooray! That is a huge accomplishment. Now, we hope she can still gain weight (at least 9 grams/day) over the weekend, so we know this new plan is working!
 |
| "Say Cheese!" Last night we went out to eat to celebrate Melissa's and my birthday. These two high-chair girls were pretty cute. One day they will be eating kids meals of their own. And that will be a day to celebrate!!! |
 |
| They loved it when they could see themselves on the screen of my phone. Here they are babbling away at themselves. |
No comments:
Post a Comment