Today has finally been a better day for Sunshine! Her congestion is already starting to clear up and she was able to eat a little more at many of her meals today. Her total for the day was 25.2oz, with 12.8oz of that being of food! Much of this past week her totals have been 20-23oz with around 10oz being from food! It is so encouraging to see some improvement! She also kept all her food down today, which is huge!
And while I've been so frustrated about the vomiting and low volumes, there are a few things Sunshine is doing very well with! One is that she has been able to try lots of new foods and for the most part, does really well accepting them! Some of the new things she has had this past week (all in smooth pureed form)--Italian Wedding Soup, White Bean Soup, Chicken Pot Pie Soup, Roast Chicken and Mashed Potato meal, and Peaches with Pancakes! Another thing she has been improving on is her chewing. For this, we wrap a small piece of food in fine mesh and hold it between her molars. We then count to 20 as she chews up and down on the food. Putting it in the mesh allows her to practice chewing food without having to "deal with" the crumbs spreading out around her mouth. She does get very small pieces that come through the mesh and she has been able to manage those very well. Some of the things she practices chewing are: Gold fish crackers, Cheerios, Graham Crackers, Club Crackers, Nutrigrain bars, puffed corn, cheese puffs, veggie straws, and yesterday she got to try oreo cookies!
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| Here Sunshine is demonstrating how she practices her "chews" |
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Sunshine and the other little girl here with us started Periactin (the medication to increase appetite) yesterday and both had a much better day today! We are so encouraged. I am hoping to see some tangible improvement and stability over the last week.
Today was a beautiful, sunny day here and it was so nice to spend some time outside after the weeks of cold and rain we have had. Buttercup was thrilled to wear shorts again!
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| It was a sunny day today! |
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| Buttercup told me "I can do it myself" and when I came in the bathroom to check on her, found this. Might not be the safest option, but I give her points for creativity! |
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| Sunshine has been mastering this play table at the clinic. Today she intently played for a good 15 minutes straight. |
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| Playing outside in the leaves with friends was a perfect way to end the day. |
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| Buttercup working on shooting a basketball. |
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| Static Electricity! |
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| Oh, how precious are these sweet girls all ready for bed. |
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